Please note: This archive was last updated in 2005.

RHO archives : Topics : Cervical Cancer Prevention

Links

Updated August 6, 2004���

Listed below are useful web resources and organizations experienced in cervical cancer control in low-resource settings.

Please note that PDF files require Adobe Acrobat Reader software, which can be downloaded for free at www.adobe.com/products/acrobat/readstep.html.

For general reproductive health links, go to the RH Resources page. The Conferences section includes information about upcoming events related to cervical cancer.

If you know of a resource to be included in this list, please send the URL (web address) and a description to: [email protected].

Information resources

Cancer Resources on the WEB from International Union Against Cancer
www3.uicc.org
A list of organizations, online journals, and networks involved in cancer prevention.

CANCERLIT from National Cancer Institute's International Cancer Information Center
www.cancer.gov/CancerInformation/cancerliterature
CANCERLIT is a bibliographic database containing more than 1.3 million citations and abstracts. These are drawn from over 4,000 different sources including biomedical journals, proceedings, books, reports, and doctoral theses from 1963 to the present. CANCERLIT is updated with more than 8,000 records every month.

Cancer Mondial
www-dep.iarc.fr
An online source of information on global cancer incidence, mortality, and survival data compiled by the International Agency for Research on Cancer from national cancer registries. This site also contains information on manuals, software, and training opportunities for cancer researchers.

Cervical Cancer Email Discussion Group
www.path.org/resources/cxca_listserv.htm
PATH (Program for Appropriate Technology in Health) has established a cervical cancer email discussion group that allows individuals and groups worldwide to share information on issues pertaining to cervical cancer in low-resource settings. For more information, send an email to [email protected].

Cytopathology Tutorial from University of Utah
www.medlib.med.utah.edu/WebPath/TUTORIAL/CYTOPATH/CYTOP ATH.html
Cervix pathology slides. To view this page, you will need web browser that can view images.

The HPV Test
www.thehpvtest.com
Although aimed at a U.S. audience, this website offers readers relevant information on cervical cancer and HPV, discusses uses and benefits of HPV testing, provides a glossary of terms, and lists links to other websites on HPV testing and cervical cancer. This website is supported by the Digene Corporation, manufacturer of the Hybrid Capture II (HC II) HPV test.

National Cervical Cancer Coalition
www.nccc-online.org
This cervical cancer website includes sections on Pap smears, insurance reimbursement, patient information and support, the latest technologies, and controversial issues. The site is primarily oriented toward a developed-country audience, but also contains broadly applicable and useful information.

National Cervical Cancer Public Education Campaign
www.cervicalcancercampaign.org
Sponsored by the American Medical Women's Association, the National Cervical Cancer Public Education Campaign is designed to provide women with information about HPV and cervical cancer, existing and new methods to detect the disease, and guidelines for discussing cervical cancer with their health care providers.

National HPV & Cervical Cancer Prevention Resource Center
www.ashastd.org/hpvccrc/index.html
This resource center, run by the American Social Health Association, provides fact sheets on HPV, information on support groups, and a toll-free hotline (for the United States) to answer questions about HPV. The hotline is open from 2 p.m. to 7 p.m. EST, Monday through Friday. The number is (877) HPV-5868.

OncoLink from the University of Pennsylvania Cancer Center
www.oncolink.com/index.cfm
The University of Pennsylvania Cancer Center's OncoLink website provides a range of information, including an overview of cervical cancer, summaries of recent U.S. meetings on cancer, and examples of provider and client information on Pap tests, colposcopy, and dysplasia treatment. The site is aimed at a U.S. audience, but much of the material (in particular the client-oriented material) could be readily adapted for use in other settings.

PUBMED Search: Cervical Cancer in Low-resource Settings
This search has been predefined.�It contains more than 1,500 of the latest citations and abstracts�from the PUBMED database.

U.S. National Institutes of Health Consensus Statement on Cervical Cancer
http://odp.od.nih.gov/consensus/cons/102/102_statement.htm
This National Cancer Institute site provides the full text of a 1996 consensus statement on cervical cancer.�The statement includes detailed information on the etiology of cervical cancer and strategies for strengthening cervical cancer control in the United States. Although aimed at a U.S. audience, this detailed and fully referenced synthesis was prepared by a group of recognized scientific experts and is a useful reference for anyone interested in learning more about cervical cancer.

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Organizations

Note: In cases where an organization has specific cervical cancer information on its website, we have provided the link.� Other organizations active in cervical cancer are also listed, without links but with contact information.

Alliance for Cervical Cancer Prevention (ACCP)
www.alliance-cxca.org
The ACCP was launched in 1999 by AVSC International (now EngenderHealth), IARC (International Agency for Research on Cancer), JHPIEGO, PAHO (Pan American Health Organization), and PATH (Program for Appropriate Technology in Health). The five-year project supports programs to clarify, promote, and implement strategies for preventing cervical cancer in developing countries. The ACCP website contains information about the organizations who make up the alliance, links to online publications and cervical cancer resources, information on the Alliance Small Grants Program, and information about the Cervical Cancer List, an international email discussion group on cervical cancer prevention issues. This website is available in English, Spanish, and French.

EngenderHealth
www.engenderhealth.org
EngenderHealth (formerly AVSC International) is an international organization committed to making reproductive health services safe, available, and sustainable by providing technical assistance, training, and information, with a focus on practical solutions that improve services where resources are scarce. Since 1995 EngenderHealth has been conducting a collaborative project with Capetown University, Columbia University, and the Cancer Association of South Africa to evaluate four screening methods for the detection of cervical cancer among previously unscreened women age 35 to 60. The methods being studied are direct visual inspection of the cervix, HPV DNA testing, cervicography, and cytology. Women with abnormalities on any of the screening tests undergo colposcopy with cervical biopsy. The results of this study will eventually facilitate implementation of effective diagnosis and treatment services in low-resource settings. They also will provide guidance in avoiding over-treatment and ensuring that screening services offered are cost-effective. The Winter 1999 issue of AVSC News, which is published four times per year, was devoted to preventing cervical cancer. Contact: Karen Beattie at [email protected] .

International Agency for Research on Cancer (IARC)
www.iarc.fr
IARC is an affiliated research center of the World Health Organization, and serves as the primary compiler of international statistics on cervical cancer incidence (based on reports from cancer registries around the world). IARC's work related to cervical cancer includes both descriptive epidemiology and clinical epidemiology research. IARC staff have conducted international research studies on HPV prevalence and HPV as a causal agent of cervical cancer and currently are undertaking a cohort study of HPV and cervical cancer in Colombia. Other research has focused on identification of additional risk factors and on testing of various detection methods. The IARC Unit of Descriptive Epidemiology provides access to Cancer Mondial, which includes two major collections of online data: (1) cancer incidence, mortality, and survival data worldwide, and (2) resources for cancer researchers.

International Union Against Cancer Fellowship Program
http://fellows.uicc.org
The International Union Against Cancer�s fellowship program provides opportunities for investigators, clinicians, registered nurses, cancer society staff, volunteers, and nonmedical professionals to participate in long-, medium-, or short-term training experience abroad. Information and applications are available on the UICC fellowship website.

JHPIEGO (a Johns Hopkins University Affiliate)
www.jhpiego.org
JHPIEGO's goal is to increase the availability of high-quality reproductive health services. Since 1989, JHPIEGO has been exploring the feasibility of several low-technology (and low-cost) alternative methods for cervical cancer screening. Prominent among these is visual inspection. JHPIEGO has several demonstration projects underway that use cryotherapy to treat precancerous lesions identified by nurses using visual inspection. It is expected that these studies will show that visual inspection done by well-trained nurses will allow the quick and easy identification of patients who are suitable for immediate treatment with cryotherapy and referral of those requiring more aggressive treatment.

JHPIEGO also offers information on cervical cancer through their reproductive health website, ReproLine (www.reproline.jhu.edu/english/3cc/3cc.htm). The site contains two cervical cancer workshop proceedings in HTML and PDF files:

The Pan American Health Organization (PAHO)
www.paho.org�
PAHO's Non-Communicable Disease Division has established three priority areas of activity: cardiovascular disease, diabetes, and cervical cancer. They have sponsored regional meetings on cervical cancer and are working to develop at least two cervical cancer control demonstration projects in the Latin American region. Plans for one of these projects are underway in Mexico in collaboration with the National Institute of Public Health in Cuernavaca, the Mexican Secretariat of Health, IMSS, and PATH. For more information, contact: Sylvia Robles at [email protected].

PATH (Program for Appropriate Technology in Health)
www.path.org/programs/p-wom/cervical_cancer.htm
The overall objective of PATH's work is to advance policies to improve cervical cancer prevention and control strategies in low-resource settings through information dissemination and targeted research. PATH has produced several documents and articles on cervical cancer prevention and control (www.path.org/materials-keycats.php?keycategory=cervical%20cancer) and moderates a cervical cancer email discussion group. �PATH also researches specific questions about appropriate technologies, effective program approaches, and user/provider perspectives. PATH carries out its work in partnership with governmental, NGO, and international agencies, and works to maintain communication with groups involved in cervical cancer work worldwide to share experiences, challenges, and key results.

World Health Organization (WHO)
www.who.int
In past years, the Cancer and Palliative Care unit was involved in studies of "downstaging" (visual inspection to identify early cancer) in a wide range of developing countries. Participants in these studies formed a WHO Network on Cervical Cancer, which still exists. In 1998, however, the Reproductive Health Technical Support division at WHO added cervical cancer to its list of reproductive health priorities and is now taking the lead at WHO/Geneva in addressing this problem. Their program includes focusing on long-term strengthening of developing country, cervical cancer control programs, with particular emphasis on early detection and treatment of preinvasive cancer. In addition, as part of its advocacy efforts, WHO plans to disseminate information about the public health importance of cervical cancer, the need to invest in prevention programs, and ideas for feasible and cost-effective approaches.�

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